This morning I was on Facebook, as I almost always am because as a blogger and social media manager the internet is always with me. I discussed our latest debacle with our youngest son Kyler and some food issues that are starting to point in the direction of sensory issues. Of course when you talk about your kids on Facebook you know someone will come in who is a doctor in everything to do with parenting, and they said that doctors just look for anything to make kids have special needs and blah blah.
It’s been awhile since I let strangers opinions get to me with my parenting, for weeks I cried about the therapists before they came in when Korey was 2. Every day we would have someone different come in and teach us how to play and teach our child so that hopefully he would talk some day and go to school. Now he’s in preschool while some things have gotten easier a lot of it has got worse. Especially his acting out, needing to repeat words, and eating.
Now that his brother is showing signs with sensory issues with foods I have to be on top of it, and hearing people say how it’s normal and he’s fine just lights a fire under my butt. How on earth can you put yourself in someone’s shoes if you don’t know the situation? It would be easier if I went day by day with a goPro on my head to show everyone what it really is like being a special needs parents. And I get that people want to say it’s not okay to say special needs, their just different. Well buddy until you’re in a IEP meeting fighting tooth and nail for your child to get the therapies they need then you really shouldn’t say those things to special needs parents.
Korey NEEDS someone next to him every step of the way in school because his poor trunk control doesn’t allow him to concentrate for more than 5 minutes. He NEEDS to go and see his speech therapist so people can understand him and not make him frustrated for being misunderstood. He NEEDS to go on the floor scooter, the balance beam and in tunnels because as much as his body craves the sensory input he also needs it to try to get his body movements to work together.
I’m learning more and more as I attempt to discuss the role as a parent to a child with SPD that people are just not going to get it, so I need to educate them on what not to say. Special needs look different to everyone, there are so many disorders each way it affects a child different, and their needs are very important. Before you decide to be the helpful friend or Facebook stranger to someone’s worries or problems think twice,would it be what you would want to hear?