Today we received a call from our case manager from Early Intervention to arrange her coming over and me (is it just me or do moms sign almost EVERYTHING when it comes to children?) sign paper work for Koreys referral for an occupational therapist.
Our case manager is amazing, I really love her and appreciate the time that she spends with us, even if she likes to stay longer just to get out of the office! We chat about everything from Korey, to her children, to our cats even. While reading what his speech therapist wrote as far as the recommendation she stopped to talk to me about the part of autistic signs. The problem with Korey is that if you only see him for an hour a day, during some of the those hours he’s tired or really focusing on what he’s doing and no he will not make the eye contact he should and yes during some moments it may seem like he’s showing signs of autism but she completely disagreed while watching him because he went against everything the speech therapist wrote down.
And that’s where we are having the problem, because sometimes someone will want to say autism while another professional (teacher or whatever) will say NO because they have SEEN what he can do. It hurt’s my heart so bad because we can’t get a reason as to why he is now the way he is and what could be wrong with him, I just have to sit and cry and help my baby along the best I can.
I broke down,again, today and Keith held me as I cried. I asked him “why give him so many things, why allow him to excel at everything and then take it all away from him?” . Everything was so perfect up until he turned a 1 1/2, things just started going away and now he has maybe 6 words and A LOT of signs now. Yes I am sooo proud at his signs that he’s doing but it hurts that he’s not saying the words normally like he should have been.
When you become a parent they only offer advice on so much, sleeping troubles, sickness, teething, not what to do when your world comes crashing down because your child loses skills. Being pregnant I’m afraid for my second child as well, not only do I worry that they could lose skills as well but now that Korey will be in 3 different therapy sessions I want to make sure I give each child enough attention, while still working on Koreys skills.
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