Today we received a call from our case manager from Early Intervention to arrange her coming over and me (is it just me or do moms sign almost EVERYTHING when it comes to children?) sign paper work for Koreys referral for an occupational therapist.
Our case manager is amazing, I really love her and appreciate the time that she spends with us, even if she likes to stay longer just to get out of the office! We chat about everything from Korey, to her children, to our cats even. While reading what his speech therapist wrote as far as the recommendation she stopped to talk to me about the part of autistic signs. The problem with Korey is that if you only see him for an hour a day, during some of the those hours he’s tired or really focusing on what he’s doing and no he will not make the eye contact he should and yes during some moments it may seem like he’s showing signs of autism but she completely disagreed while watching him because he went against everything the speech therapist wrote down.
And that’s where we are having the problem, because sometimes someone will want to say autism while another professional (teacher or whatever) will say NO because they have SEEN what he can do. It hurt’s my heart so bad because we can’t get a reason as to why he is now the way he is and what could be wrong with him, I just have to sit and cry and help my baby along the best I can.
I broke down,again, today and Keith held me as I cried. I asked him “why give him so many things, why allow him to excel at everything and then take it all away from him?” . Everything was so perfect up until he turned a 1 1/2, things just started going away and now he has maybe 6 words and A LOT of signs now. Yes I am sooo proud at his signs that he’s doing but it hurts that he’s not saying the words normally like he should have been.
When you become a parent they only offer advice on so much, sleeping troubles, sickness, teething, not what to do when your world comes crashing down because your child loses skills. Being pregnant I’m afraid for my second child as well, not only do I worry that they could lose skills as well but now that Korey will be in 3 different therapy sessions I want to make sure I give each child enough attention, while still working on Koreys skills.
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alicia k (Petite Pilates Pixie)
just stay patient and try not to get frustrated. keep working, he’ll get there!
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Jacqueline Presley
Praying for you & your family.
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Julie Wood
Thank you for sharing this post with your readers. You are doing everything you can with Korey, and he is going to get a wonderful Occupational therapist that will really help him. I hope you feel better after crying and I am glad Keith was there to help you. My prayers are with you!
Renee Hutchinson
Hang in there I have been there with my daughter. It all pays off in the end.
Sarah L
Ah, the joys of being a parent of a special child – although I think ALL kids are special in their own ways. I wish you good things for your children.
Barbara Platt
Every child is a Miracle of God. Love them and care for them the best way you know how. Ask and He will guide you.
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doan b
Beautiful little boy!!!!!!!!!!!!!!!
Trust in the Lord, he knows what hes doing.
Cheryl Gangwer
Aw! He’s such a cute little boy. I wish I knew what to say to make you feel better. He looks strong, healthy & happy and like he will make it far in life. Some people will say anything, and it’s just not true sometimes. Like my adopted neice – the doctor told her mother that she would never “walk” or “talk” because of medical issues when she was a newborn. She walks, talks, and a smart, sweet girl. She accepted this as a mother, but it was never true. Just be strong. Love is stronger than worry, right?
Deborah D
It sure is tough to know what is best for your child. Sometimes you just have to hope & pray that you are doing the best that you can.